Saturday, October 22, 2016

EZ's eye surgery

Somewhere along the lines I've written about EZ's eyes, but he has a nerve syndrome called Duane Syndrome which means his brain makes his eyes wander and sometimes turns one of them off when he can't control both of them in order to see. The Dr thought it was time to do surgery to have the muscles override the brain and try to straighten them out, so it happened August 25th. What a nerve wracking situation to send your child in for surgery! Even for a minor eye surgery, let alone something more serious!! So much courage in parenting. EZ was brave and although he cried a little before we left for the hospital, he was calm and even excited once we arrived. He joked with the nurses and walked right in to the room holding the dr's hand like it was no big deal. He also said he "tricked them and didn't go to sleep... I just pretended!" when we asked how he liked the cotton candy air. Recovery was mostly okay after we got past the first night (he was so sick from all the drugs and wouldn't stop throwing up), but by the next morning he didn't seem to have much pain and besides being itchy & having to stop him from rubbing them, he was great. He actually didn't even notice his eyes were red for a few days because he's 5 and doesn't look in the mirror that much! He came out of the bathroom one day and was like, "Mom! Why are my eyes so red!?" haha, it was pretty funny. He was seeing double (cross-eyed) for about two weeks but thought it was funny to say "Hey! There are two of you!" and would actually sort of joke about the fact that he was seeing double. After about a week we had to force him to calm down and take it easy because he felt restless, and eventually the redness went away and he's back to normal without the double vision. (His eyes were not normally so close together, so he had to re-train his brain with his eyes closer together. The doctor said we are about 80% straighter, and he might need another surgery down the road, but for now we're stoked with the results (and he's mighty fine looking with his new glasses as well.) We'll head back for a follow up after 6 months and see if it's affected his eye sight prescription much, but we're thankful it's over and it went extremely well.

Examples of what his eyes would do before the surgery when he wasn't focusing on something or even trying to look straight without tilting his head (he turns it to the side slightly to look straight.)
New glasses before the surgery
 Oh ... seeing him so tiny on the bed was such a moment I'll never forget. Poor puppy. Brave everyone in these situations.
 Thankfully it was outpatient and after a few hours of rest, we took him home.

 A couple days later above, a month later below. He still tilts his head to see straight and you can still notice some wandering, but not nearly as much. Plus, you probably won't notice anyway because he's so handsome ;)

1 comment:

  1. This was the surgery I had last year and it wasn't very fun. Stitches under the eyelids was quite uncomfortable. He'll enjoy the eyes. Glad he was able to get it done.